Sunday, December 10, 2006

Day 115: What a long, strange year it's been

Weight: 151
IgG: 1470 [9171 at diagnosis in January 2006]
M-spike: .9 [7.3 at diagnosis]
B2 Microglobulins: 2.53 [6.7 at diagnosis]


You know it's been too long since your last post when it takes five minutes to figure out what "Day" it is. I think it's been 115 days since Richard's August 17 transplant.

Richard is doing pretty well, overall. Here he is after stringing the Christmas tree lights. The popeye biceps are unintentional. Seriously.

Other indications that he's feeling and looking better:

-- He has hair. And, yes, sometimes it's little things like hair that make us feel normal.
-- His weight is pretty decent. He now weighs about 151. Not bad. It's up from a low of 138 in the hospital.
-- He's getting fiestier (fiesta-ier?). This is good and bad news. The good news is it means he's feeling better; the bad news is I'm not getting my way as often. But fiesty is good.
-- His blood counts continue to look good, i.e. his red and white counts are just a smidgen below normal.

Some recent news, however, was a bit discouraging. We had hoped the stem cell transplant would have produced a complete remission (no myeloma cells). However, we learned last week that Richard is in partial remission. His IgG level is on the upper end of normal but myeloma cells remain, evidenced by monoclonal protein levels (myeloma cells produce monoclonal protein). Richard's "M-spike" (measurement of the monoclonal protein) is now .5; full remission would be .0. His Lambda light chain level (don't they sound innocent?) is high (430), but lower than at diagnosis (2030).

So now we have several options: have a second stem cell transplant in early January; take a wait and see approach by monitoring his IgG and M-spike levels over the next month or two to see if the levels drop more or start to rise; start a new round of chemo with different drugs (since the ones he used before were either moderately unsuccessful or produced an allergic reaction); or some combination of the three. After a phone consultation with Dr. Durie of the IMF, we've opted to have tests over the next month or two to monitor any change.

So while we wait and see, life keeps us twirling round and round: we anxiously anticipate the birth of our first grandson in April; Richard participates in a writing class through Sutter Cancer Center; and I mourn the loss of my mother.

I think we're definitely ready to give 2007 a try.

12 Comments:

At 12/11/2006 5:38 AM, Blogger Don said...

Rhanks SO much for posting. We were getting nervous out here in the blogosphere.

So very glad that Richard is feeling his oats again. I hope that the remaining myeloma is responsive to some of the other treatment possibilities. There are still more arrows in the quiver, like Revlimid.

 
At 12/11/2006 7:26 AM, Anonymous Anonymous said...

Good update - Hair is good; feisty is good; Christmas lights are good; New Years are good; Popeye biceps are good. We love you guys.
Dale and Kim

 
At 12/11/2006 9:38 AM, Blogger Gracie Cole said...

great to see an update. i like the christmas tree picture - wish i were in california for christmas. lots of love!

 
At 12/11/2006 9:53 AM, Blogger Kristen said...

The tree looks good..is it real?:)

 
At 12/13/2006 5:58 PM, Blogger The Armstrong Brood said...

Thanks for the update. Uncle Richard, you are sounding very academic these days. Still tinkering with the guitar? Love you guys!

 
At 12/13/2006 11:38 PM, Anonymous Anonymous said...

Like all the others - SO glad to hear from you. Heard thru the family grapevine that you were busy, and we take the 'no news is good news' approach.
Great new picture! The folk guitar pic was good, too - but nice to see an updated one. You look great, Richard! You're quite the photog, Robin!
All the best with your tests and new choices. The quiver's always more than half full - remember that!

Lots of love from Lyon!

 
At 12/14/2006 12:06 AM, Blogger rhondajo said...

I love you both very much.

 
At 2/11/2007 4:54 PM, Anonymous Anonymous said...

Hi Robin . . .
Is your blog still active? I've been following yours and Richard's journey with some interest . . . I will be on the same journey very soon - probably start the cytoxan phase first week of March.

Is Richard OK? Hopefully he bounced back from his initial response following the transplant.

I know how much energy treatment can take - for the treatee as well as the support team. I'm sure that many others, like me and my wife, truly appreciate your sharing your ups & downs. Thank you.

Barry Jones
bigwaves1@suddenlink.net

 
At 5/21/2007 11:29 AM, Blogger Don said...

Hello Richard,

Are you still alive? Curious minds want to know ...

Don

 
At 8/01/2008 9:03 PM, Anonymous Anonymous said...

Likewise, a recent MM patient facing SCT in the next month or two, hoping to hear that you are well! (lacootina.blogspot.com)

 
At 9/08/2008 12:26 AM, Blogger rhondajo said...

Need an update!!!! :)

 
At 4/30/2012 12:33 PM, Blogger Mrs. Natalie Wilson said...

I would love to get an update on Richard. Please email me at nwilson0601@yahoo.com

My dad is about to undergo a stem cell transplant.

 

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